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Updated 3/21/08                                                             Back to Professional Resource Directory, Table of Contents

Resources for Professionals Serving Montana Children with Disabilities

General Health Care |  Mental Health  |  Physical/Intellectual/Developmental Disabilities | 

Substance Abuse

General Health Care

Center for Health and Health Care in Schools Based at Georgetown University, the Center tests model programs to expand dental and mental health services to children through school-based health centers; analyzes policy options for organizing and financing health programs in schools; advises government officials and leaders in schools and health care institutions on how to provide cost-effective, accountable school health programs; researches issues and publicizes findings on the effectiveness of various school-based health programs and services; informs policymakers and the public on alternative approaches to school-based health programs and services through the CHHCS website, listserv, e-journal, and print publications.

Children's National Medical Center Comprises six Centers of Excellence:

The Center for Cancer and Blood Disorders

The Diana L. and Stephen A. Goldberg Center for Community Pediatric Health

The Center for Heart and Kidney Disease.

The Center for Hospital-based Specialties Core inpatient services, including emergency care, neonatal and pediatric critical care, general inpatient care, diagnostic imaging and radiology, and respiratory therapy, as well as multiple outpatient services.

The Center for Neuroscience and Behavioral Medicine. Treats illnesses involving a child's psychological well-being, brain and nervous system.

The Center for Surgical Care.

Covering Kids: National Health Access Initiative for Low-income, Uninsured Children Helps states and local communities increase the number of eligible children who benefit from health insurance coverage programs.

Data Resource Center on Child and Adolescent Health Free, easy-to-use website with national, state, and regional survey findings, interactive data search tools, personalized technical help by email or telephone, and information and examples to help visitors use data more effectively. 

Family Doctor American Academy of Family Physicians has developed a web site designed to provide health information to the whole family, including teens. The teens section includes information about a number of childhood chronic health conditions, including sickle cell, cystic fibrosis, diabetes and cerebral palsy. Each brief condition specific entry includes information about "what doctors do" to treat the condition; and what teens can do to cope with the condition, and be healthier.

Health Care Transition The Promising Practices in Health Care Transition Project at the Institute for Child Health Policy at the University of Florida.

Health Resources and Services Administration, Maternal and Child Health Bureau, Division of Child, Adolescent and Family Health.

Association of Maternal and Child Health Programs.

Healthy Mothers, Healthy Babies Coalition.

Montana CHIP (Children's Health Insurance Plan)

Montana Public Health Home Visiting Program

National Association of School Nurses

National Center of Medical Home Initiatives Sponsored by American Academy of Pediatrics, provides "Every Child Needs a Medical Home" Training Curriculum.  Curriculum has seven components offering strategies and resources to provide care for children in a changing health care environment and provide a practical framework for creating medical home implementation awareness.

National Institute of Child Health and Human Development. Conducts and supports laboratory, clinical, and epidemiological research on the reproductive, neurobiologic, developmental, and behavioral processes that determine and maintain the health of children, adults, families, and populations.

Public Policy Information and Analysis Center for Middle Childhood, Adolescent and Young Adult Health. Assists Maternal and Child Health Bureau in identifying, developing and analyzing information helpful to practitioners and policymakers at the national, state and local levels.  The goal is to enhance the health status of the middle childhood and adolescent populations.

Research and Policy Center for Childhood and Adolescence, School of Medicine, University of California at San Francisco.

Teaching, Responding and Communicating Quality Physical Education: Creating Quality, Inclusive Physical Education & Physical Activity for all Students Publication from the North Carolina Office on Disability and Health.

Mental Health

American Academy of Child and Adolescent Psychiatry.

Center for School Mental Health Analysis and Action

Montana Children's Mental Health Services

National Association of School Psychologists provides information for students, families and teachers.

National Technical Assistance Center for Children's Mental Health. Based at Georgetown University, this center serves both vulnerable children and their families, and influences local, national, and international programs and policy.

Research and Training Center on Family Support and Children's Mental Health Focuses on improving services to children and youth who have mental, emotional, or behavioral disorders and their families.

Shodair Hospital (Helena) The Children's Unit provides in-patient psychiatric services for children 3-12 years old.  Two Adolescent Units provide residential psychiatric treatment for children 12-18 years old. Shodair also conducts more than 70 genetics clinics annually throughout Montana to diagnose genetic conditions or disorders.  Staff work with state perinatologists to diagnose and manage pregnancies at high risk for genetic disorders or birth defects.

Tunnels and Cliffs : A Guide for Workforce Development Practitioners and Policymakers serving Youth with Mental Health Needs helps workforce development practitioners, administrators, and policymakers increase their understanding of youth with mental health needs and the supports necessary to help them transition into the workforce successfully.

Physical/Intellectual/Developmental Disabilities

Epilepsy Foundation Provides training programs and "seizure smart" resource kits for teachers to increase their sensitivity and knowledge about seizures and supplies a comprehensive "Students with Seizures" manual for school nurses. An entire section is devoted to teachers, providing them with seizure information and suggestions on how to talk to kids in the classroom after a child has a seizure.

Family Doctor American Academy of Family Physicians has developed a web site designed to provide health information to the whole family, including teens. The teens section includes information about a number of childhood chronic health conditions, including sickle cell, cystic fibrosis, diabetes and cerebral palsy. Each brief condition specific entry includes information about "what doctors do" to treat the condition; and what teens can do to cope with the condition, and be healthier.

Genetics Home Reference National Institutes of Health online portal offers parents and physicians consumer-friendly information on over 200 genetic disorders and related genes. The site features an illustrated tutorial that explains the basics of genetics and includes a glossary of genetics terms. The lay-friendly site is particularly helpful to parents whose newborns have been detected with a genetic condition, and are looking for easy-to-read information on specific conditions.

Growing Up with Spina Bifida: What Have We Learned Report from the North Carolina Office on Disability and Health summarizes the major findings of the spina bifida research study, "Quality of Life and Secondary Conditions in Individuals with Spina Bifida."

Kennedy Krieger Institute Internationally recognized facility in Baltimore, Maryland is dedicated to improving the lives of children and adolescents with pediatric developmental disabilities through patient care, special education, research, and professional training. The Institute's clinical programs offer an interdisciplinary approach in treatment tailored to the individual needs of each child. Services include over 40 outpatient clinics; neurobehavioral, rehabilitation, and pediatric feeding disorders inpatient units; plus several home and community programs providing services to assist families.

Montana Children's Special Health Services

Montana Early Childhood Comprehensive System

Montana Newborn Screening

National Center on Birth Defects and Developmental Disabilities identifies the causes of and prevents birth defects and developmental disabilities, helps children to develop and reach their full potential, and promotes health and well-being among people of all ages with disabilities. 

National Collaborative on Workforce and Disability for Youth. Ensures that young people with disabilities have access to high-quality services to maximize their opportunities for employment.

Online Oral Health Tutorial for Non-Dental Professionals: The UCLID Center (LEND Program) at the University of Pittsburgh has added a section on oral health in infants, toddlers, and preschoolers and children with disabilities to its free online tutorial.  In addition to a general overview there is specific information regarding oral health in individuals with HIV/AIDS, Cerebral Palsy, and Down Syndrome.

PEAK Parent Center, Inc. - Region 5 Parent Training & Technical Assistance Center serves Arizona, Colorado, Kansas, Montana, Nebraska, New Mexico, North Dakota, South Dakota, Utah and Wyoming.

Think College U.S. Department of Education web site for students with intellectual disabilities, family members, and professionals. Provides a searchable database of postsecondary education programs that support youth with intellectual disabilities, a discussion board designed by students for others interested in sharing college experiences, "Choice for Everyone" Listserv for family members and a wide range of professionals, and a resource section of web-based resources and publications.

Substance Abuse

Center for Treatment Research on Adolescent Drug Abuse . Develops, refines, and evaluates family-oriented treatments for drug abusing adolescents. CTRADA investigators also aim to develop a greater understanding of treatment factors and patient and family characteristics that increase or decrease the likelihood of treatment success.

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